Saturday, January 16, 2010

Update on Noah's tests

As soon as I got in my car to go to work this morning I received a call from Tammy, a nurse for Noah's doctor.  The first thing out of her mouth was "Missy, well......I don't have very good news."  I should start off by saying that I love the nurses that work for Dr. V.  They are always so helpful, well most of them are anyways.  I do have my two favorites and Tammy is one of them, however, after hearing that opening statement, I really didn't want to talk to her.  I just called two days prior because I was tired of waiting on the results and another nurse told me they thought everything was fine with the test that were done on December 22nd.
The nurse proceeded to tell me that during the sleep study Noah had 6 central apneas and two complete airway obstructions, which both caused his oxygen levels to drop.  (I would think it's a given that if you stop breathing, your levels would go down.)  The nurse told me that complete airway obstruction can be caused by reflux, adenoids, or tonsils.  I was (and still am) confused about what "central" apnea is.  I was told it's related to the brain.  I read that the respiratory control centers of the brain are imbalanced.  I, honestly, am too scared to even read about it.  I kind of figure if I don't read about it, then I won't have anything to be scared of.  Lack of knowledge = lack of fear....right?  Not so sure about that, but I don't want to be up all night worrying so I may read more tomorrow.  The nurse also told me that they forwarded all of the results to Noah's pediatric GI specialist and to an ENT to review.  Dr. V is also having a specialist look at the PH study results and the sleep study results and correlate the info to see if the reflux is causing the apnea.  We are supposed to follow up with 'some' doctor for upper airway resistance testing.  (not sure what exactly that entails)  Dr. V did increase Noah's prevacid from 7.5 mg once daily (in the am) to 7.5 mg twice daily (morning and night).  I am praying that this "fixes" everything!
The nurse also received the download from the apnea monitor, which was the results from Nov. 16th-Dec. 18th.  This is the third consecutive month long download that hasn't had a good outcome.  Noah had apnea episodes ranging around 18 seconds in length.  They said it is verified by the change in heart rate.
Our hopes of getting this monitor off by his first birthday have now went down the drain.  I hate this.....I hate that he has to wear the monitor for about 12 hours at night and 2 hours during the day.  I hate that his skin is so irritated from the electrodes and that he cries every time I put them on him.  The nurse said, "it only takes one time of not putting it on, not having the alarm go off, it only takes one time."  She is right and I will continue to do everything they say and recommend.  I am finished with this apnea stuff.  BY HIS STRIPES WE ARE HEALED and I know that my Jesus has already paid the price and we are healed and we will walk in health!  I know that my son is perfect and I need to CAST OUT ALL NEGATIVE THOUGHTS OF THE IMAGINATION!  "FOR GOD DID NOT GIVE US A SPIRIT OF FEAR, BUT OF LOVE, POWER, AND A SOUND MIND."
I want to thank all of my friends and family for praying for us.  My children are my life and I am asking for you to please continue to pray for Noah.  Thank you!

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