Noah's doctor called last Thursday and said his monitor download came back with only one episode and after speaking with a neonatologist, he has decided to discharge the monitor!!!!!!!! He has done great without it and I am so happy! Noah has had the monitor for over 7 months (that's over half of his little life)! Thank you to everyone who has prayed for him and our family!!!!
We finally heard back from Dr. M, Noah's pediatric GI doctor yesterday. Click here to read about that appointment on March 9th. He finally convinced the doctors that read the ph study and sleep study (that post is here) to correlate the results to determine whether the apnea was related to reflux or something else. He told me that one of the complete airway obstructions was related to a ph lower than 4 and three of the other apneas was related to a ph under 4. Dr. M isn't sure what is causing the other events. He stated he was going to discuss taking Noah off the monitor with our pediatrician because Noah is getting bigger and it's a lot easier to get tangled in the cords. I asked him if he thought it was safe to take him off the monitor and his reply word for word was, "I can't tell you if your going to get in a car wreck tomorrow." I really thought that was inappropriate and I think that my question was a legitimate question. His response didn't exactly give me a safe feeling about it! I know that he specializes in GI issues and couldn't explain the other events and could only discuss the results related to reflux. His recommendations were to continue with the prevacid twice daily and continue the monitor until I speak with Dr. V. I heard from Dr. V's nurse today and she said that he is not ready to take Noah off the monitor yet. Since speaking with Dr. M., he has been trying to decide whether to send Noah to see the ENT, pulmonologist, or neurologist. He decided to schedule Noah to see a pediatric pulmonologist and to have a barium swallow study. These will probably be done in about two weeks. So keep little Noah in your prayers and pray for wisdom for these doctors. Home health came out today to download the information from his monitor so we should get those results in a few days. We are expecting to receive good news! I would love to see a perfect reading! Noah is also experiencing a side effect from the prevacid, sweating. Not just typical sweating, but when he sleeps he is often drenched with sweat. I picked him up from his nap the other day and when Seth walked in the door he asked if he had a bath. We are praying that this stops. Other than these issues, Noah is such a happy, active, fun little boy! He is 14 months and already teases his sister and the dogs. He has decided he doesn't want to have anything to do with sign language now and would rather scream and point. (nice) He loves any kind of ball and loves to throw and kick. He has been eating more and more lately! His favorites are chicken nuggets, cheese, and quesadillas. He is into everything so we have to watch him like crazy! He will sit in a swing outside for hours if he could. When he is swinging, he is just so peaceful. He doesn't make a sound and you can just see how relaxed he is. I love it! I love him!
Seth and I celebrated our 5th wedding anniversary last month. It was actually snowing pretty heavily when we woke up and we weren't sure if we would be able to celebrate, but it wasn't as bad as they predicted! We dropped the kids off with gramma for the night and had a great time! We went to the movies and watched 'She's just not that into you.' It was very funny (lots of foul language but very funny)!! We then went to have a pedicure together and then headed downtown to eat at Crab Town. We enjoyed drinks and buckets full of crab, shrimp, pork chops, and all the fixins! Afterwards we enjoyed cake, ice cream, and wine at La Baguette and stayed the evening at the Colcord! It was nice to have an evening with just the two of us! Here are a few pictures from the evening!
This is a blog for family and friends, as well as for myself to document memories, thoughts, and events.
Seth and I have been married for five years. We have been blessed with two amazing children, Halle and Noah. We also have two boxers, Zoe and Booze. We are a happy family that has an everlasting love for God, family, and friends!